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Rare Disease Companion (RDC) is a network of news and information websites that supports people living with rare diseases. Through accurate, authentic, and compassionate news coverage, feature-length articles, and patient-friendly educational material, RDC provides insights into living with rare diseases at every point along the patient journey.
Researchers call for greater consensus in HDFN treatment
Jan 23, 2025 · Researchers stated that greater consensus is needed across the healthcare field on managing and treating HDFN. There is a greater need for consensus in the management of hemolytic disease of the fetus and newborn (HDFN), as well as better global clinical representation, according to an expert ...
Infant with HDFN and spinal muscular atrophy successfully treated
15 hours ago · An infant was recently diagnosed with both HDFN and SMA at the same time. This appears to be the first description in the literature of a presymptomatic infant with SMA who was diagnosed with alloimmune HDFN as well. In this infant, the presence of HDFN was linked to the development of hemolytic ...
- HDFN Companion
About HDFN Companion. Just as many people with rare diseases and disorders such as Hemolytic Disease of the Fetus and Newborn (HDFN) suffer from unmet medical needs, so too do they suffer from unmet informational needs on the web.
What to know about delayed hemolysis in infants with HDFN
2 days ago · Medium close up shot of mother holding newborn infant against chest during visit to doctors office Learn about why delayed hemolysis occurs, how it can affect newborns diagnosed with HDFN and how it can be treated. Delayed hemolysis, also known as late-onset hemolysis, sometimes occurs in newborns ...
Panel of experts agree on new recommendations to manage HDFN
Dec 5, 2024 · The expert panel included over 100 experts from 25 countries. Each one answered different questions regarding critical issues in HDFN management and reached a consensus on optimal techniques for determining fetal blood type, alloantibody titer thresholds, and the use of intravenous immunoglobulin (IVIG).
What you need to know about antibody titers and HDFN
Jan 21, 2025 · A healthcare professional holds up a vial of blood/Getty Images Learn more about how antibody titers affect HDFN, how they are tested and what can happen if antibody titer levels are too high. If you are managing a pregnancy affected by hemolytic disease of the fetus and newborn (HDFN), you will be ...
Your guide to insurance and financial support for HDFN treatment
Dec 4, 2023 · The evolution of HDFN treatment. With the use of anti–D immunoprophylaxis, HDFN linked to ABO incompatibility and other alloantibodies has become a major cause of this disorder in Western nations.. The administration of Rh immunoglobulin to RhD-negative mothers throughout their pregnancy and shortly after the birth of an RhD-positive infant has dramatically decreased the incidence of Rh ...
Patient Voices - HDFN Companion
Rare Disease Companion (RDC) is a network of news and information websites that supports people living with rare diseases. Through accurate, authentic, and compassionate news coverage, feature-length articles, and patient-friendly educational material, RDC provides insights into living with rare diseases at every point along the patient journey.
How does RhIG treatment prevent HDFN?
Jan 24, 2025 · Courtesy Getty Images Learn more about what Rh immunoglobulin (RhIG) treatment is, how it is administered and how it works to prevent HDFN. In pregnancies at risk of developing hemolytic disease of the fetus and newborn (HDFN), Rh immunoglobulin (RhIG) is standard procedure to potentially prevent it ...