Young girl with rare disease looking for first responder patches for her lengthy road to recovery
A young girl with a rare disease is preparing for a lengthy road to recovery. She’s hoping to decorate her hospital room with ...
Child with rare epileptic disorder receives long-awaited diagnosis
Researchers provided a long-awaited and rare genetic diagnosis in a child with Lennox-Gastaut syndrome, a type of ...
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Portugal. The Man highlight rare disease month as bandmember’s daughter battles genetic disease
February is Rare Disease Month, an annual effort to highlight the challenges families can face while navigating rare ...