News

Questions over cost of muscular dystrophy drug in Belfast Trust
The drug, Givinostat, has been approved as safe for use but Belfast Health Trust, NI's specialist centre for the condition, ...
Parents whose sons are losing ability to walk face ‘nightmare’ battle with NHS
Families are now facing a postcode lottery over who gets the drug givinostat, which can slow progress of Duchenne muscular ...
American compares Tesco to US supermarket and is 'mind blown' over key difference
American mum Paige Wester, who is now living in England, has gone viral after demonstrating just how different the US and UK ...
LancsLive on MSN4d
'Our 'lively and vibrant' five-year-old died from meningitis after being told 'death was preventable''
"When I woke up in the morning she was dead," Rachael who was working as a district nurse at the time, for the trust that ...
Parents of 10-year-old twins with same debilitating illness describe ‘nightmare’ NHS battle
The Day family have twins Jasper and Arabella, aged 10, and two older daughters. While both Jasper and Arabella have Duchenne ...
'I trusted them when they told us Lila didn't have it. The next morning she was gone'
"I left the hospital thinking she didn't [have meningitis]," Rachael added. At 4am, Lila woke up complaining of a headache ...
London Evening Standard4d
Parents whose sons are losing ability to walk face ‘nightmare’ battle with NHS
Around 500 boys in the UK are eligible for givinostat, which can be taken at home like Calpol, with hospitals then doing follow-up blood tests of around eight in the first year, followed by twice ...
They went on a picturesque family trip to Dovestone Reservoir, but life would never be the same again
Lila was kept in for further observations. Rachael said she was again 'reassured' she 'wouldn't have meningitis'. Lia was then seen by a paediatric registrar, who performed the 'Kernig' test for ...