I spent my childhood and young adulthood being told I was “too young and healthy” to be dealing with the health issues I experienced. But as an adult, I was determined to find answers, and eventually, ...

Growing up with CF, running was never an easy thing for me. Despite that, I dedicated myself to my school’s cross-country team for years and earned a spot on the varsity team. When the chance to ...

The looming awareness of my own mortality from cystic fibrosis fueled years of substance misuse. But after hitting bottom and seeking help through a health program, I have been sober since August 2024 ...

With advancements in cystic fibrosis treatments, individuals with the condition are now living longer and healthier lives, often well into adulthood. This progress has opened the door for many to ...

The Cystic Fibrosis Foundation is aggressively pursuing potential treatments for people with CF who have nonsense and rare mutations who will not benefit from drugs known as modulators, which correct ...

If the transplant committee thinks transplant surgery would be harmful to you, ask your transplant team about what options you have. It is possible that you will need to receive treatment for a ...

Your transplant team and CF care team can help you think about whether to get listed. Knowing the risks and benefits can help you decide when to get listed. It also helps to understand the factors ...

I’ve always believed that I had a story to share — this is the time to do so. I was born in 1984 to a set of parents with different lifestyles, not knowing how my life would turn out. I’d love to tell ...