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'I Was Diagnosed With a Rare Genetic Condition At 20—These Are the First Symptoms I Noticed'
Related: 'I Was Diagnosed With a Rare Heart Condition At 25—This Unexpected ... which then showed that Korbitz had von Hippel-Lindau syndrome. Though VHL is a genetic condition, neither one ...
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NICE clears NHS use of MSD's Welireg for genetic disorder
In final draft guidance due to be finalised before the end of the month, Welireg (belzutifan) has been recommended as an option for treating adults with von Hippel-Lindau (VHL) disease ...