If fragmented care was associated with improved outcomes, this might be an indicator that spending the time and resources to travel to a high-volume center is more advisable.

If fragmented care was associated with improved outcomes, this might be an indicator that spending the time and resources to travel to a high-volume center is more advisable.

"Fragmented care" is ultimately defined as “care that is diffusely spread across many physicians, such that no single physician accounts for a substantial proportion of visits." This can ...

The consequences are as predictable as they are devastating: worse patient outcomes, fragmented care, longer hospital stays, ballooning costs and rising frustration and anger among staff and patients.

Alpha-1 is a microcosm of the rare disease world. The challenges we face, late diagnoses, inconsistent care, and unaffordable ...